Saturday, 23 September, 2017

Emotion-charged Charlie Gard case to continue

Court To Rehear Charlie Gard's Case UK court hearing begins for terminally ill baby
Tracy Craig | 12 July, 2017, 00:41

Connie Yates and Chris Gard, the parents of a critically ill 11-month-old British baby were given two days at a high court hearing on Monday to produce convincing evidence for why their son should be allowed potentially life-saving experimental treatment.

However, on Friday, Great Ormond Street had said that two unidentified worldwide hospitals had "communicated to us that they have fresh evidence about their proposed experimental treatment".

The evidence came from researchers at the Vatican's children's hospital and another facility outside of Britain, AP reported.

A British court on Monday began re-examining the case of a terminally ill baby whose life support is due to be withdrawn at a London hospital, after Pope Francis and US Donald Trump intervened in the case.

The brain damage Charlie has already suffered is irreversible, meaning even on the off-chance the experimental treatment extends his life, the little boy will remain blind, deaf, unable to breathe on his own and unable to move.

The parents have gone all the way to the European court of human rights in their quest to continue treatment, but it was a letter from seven doctors urging the hospital to reconsider its decision that lead to a new hearing in the case.

Baby Charlie Gard with his parents, Connie Yates and Chris Gard.

Yates has said previously that, should the money raised for Charlie not be used on his treatment, it will be offered to support other children with similar genetic disorders.

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Here in Britain, Charlie Gard is an 11-month-old baby who suffers from a very rare inherited disease which means he can not move his arms or legs.

The child's father yelled at a barrister representing the hospital during Monday's hearing, saying "When are you going to start telling the truth?"

That's why the British courts ruled the way they did.

Gard's lawyers echoed Yates' claim when they appealed before Francis for a new trial and argued that a different judge should preside over Thursday's trial. "Please listen to us", she said.

His parents have claimed that they have evidence of treatment in the US that could save his life, though Francis has given them by 2 p.m. on Wednesday to produce the details, with another hearing scheduled for Thursday.

Speaking to the BBC before Monday's hearing, Yates said the couple had endured a "living hell" over recent months, saying "it's terrible that this decision has been taken out of our hands".

"I did my job", Francis said.

"There is nothing to lose, he deserves a chance", she added.

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